Lupus

[Braves]

Does anybody know about this disease? My wife found out about 8 months ago that she has it internally. She is slowly debilitating as this disease is eating her muscles. I don't know of anybody who has this disease nor do I feel I have as much info about it as I should. Does anybody know of anybody that has this dreadful disease? What are they taking..what are they doing to help themselves? Thanks for any info

 

[SilverSurfer]

I'm sorry to hear about that Braves. I don't know much about it myself, this may help:

http://www.lupus.org/

 

[Stargazer]

Braves, I'm sorry, I don't know anything about it other than the fact that it is a serious disease. I am sorry that you and your wife have to deal with this problem. I'll be keeping you in my thoughts and will forward any info I might run across.

 

[Puttingood]

I will find out about it.

 

[WilliamJ]

Originally posted by Braves
Does anybody know about this disease? My wife found out about 8 months ago that she has it internally. She is slowly debilitating as this disease is eating her muscles. I don't know of anybody who has this disease nor do I feel I have as much info about it as I should. Does anybody know of anybody that has this dreadful disease? What are they taking..what are they doing to help themselves? Thanks for any info

One of the girls I work with mother has it....I'll talk to her tomorrow and get back...

 

[Braves]

Thanks guys. I debated whether to say anythng because I wasn't looking for a pity party...but this is one of the great things about this board. There is always somebody who knows something. Again, thanks for your kind words and am hoping for some informative responses.

 

[Patti]

I am sorry about that Braves.. I don't know anything about Lupus but I have researched other medical conditions on the web and have always found an abundant of stuff. I think the best way to start is just to search Lupus and you will get a few thousand sites.

The best are the hospitals with online information you can trust them to have correct information. WEBMD.com JohnHopkins.com

 

[sadic1]

Sorry to hear that, Braves. I know somebody who has had it for a long time and appears to live a normal life. She was concerned about any possible negative ramifications that having kids would cause for her or the baby, but is going through with it with her doctor's approval, so for her it doesn't seem too bad a prognosis. I don't know how many different types there are or what the range of progress and symptoms of the disease is.

 

[Fred]

It is an autoimmune disease that weakens the immune system but is not passed on like HIV, it is hereditary. I’m so sorry to hear about that Braves- is she on a shit-load of steroids to boost her immune system?

 

[Braves]

Originally posted by Fred
It is an autoimmune disease that weakens the immune system but is not passed on like HIV, it is hereditary. I’m so sorry to hear about that Braves- is she on a shit-load of steroids to boost her immune system?

Yes, including Prednazone..she hates that stuff. The drs, are not real up to date on Lupus. I have read a lot of info, but don't know anybody who has it. There are two types: External, which many people have noticed. People with rashes all over their face. Although this can become unsightly, it is not deadly. The other type is internal. As Fred described, it destroys cells and musculature. My wife is 39, of course she may be 39 for a few years..age does make a difference.